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My daughter was diagnosed with a brain abnormality, Agenesis of the Corpus Callosum (ACC), when she was 2 years old. Since then I have ferociously consumed any literature, case studies, and general information on the topic. My daughter is now reaching an age where she has some awareness of her difficulties, but no clear idea why. The word agenesis is the Greek form of absent. In her case the corpus callosum, which connects the brains two hemispheres , is completely absent. I have spent many hours staring at images of this part of the brain, and have
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decided to use the metaphor of a broken butterfly to explain this to my own child………..
I have a broken butterfly that lives inside my head
It has the most beautiful wings, but it has no back!
As I grow and learn the wings flutter and dance,
Yet they will not talk to one and other,
Which can make me mad!
They make it hard for me to walk,
So hard for me to skip!
I am only four you know,
But my determination is my thread.
My Mummy and Daddy hold the needle,
As I sew them piece by piece,
In any way I can.
My
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physio,
My cast,
My walking frame,
And lots of games.
My big brother by my side.
His butterfly is strong,
So he helps me stitch.
We all have different butterflies,
Living in our head.
I have a patchwork butterfly,
I made all by myself,
Look!
Can you see it fly!
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Gemma Chatzipanagiotis - 5 Feb 19
My daughter was diagnosed with a brain abnormality, Agenesis of the Corpus Callosum (ACC), when she was 2 years old. Since then I have ferociously consumed any literature, case studies, and general information on the topic. My daughter is now reaching an age where she has some awareness of her difficulties, but no clear idea why. The word agenesis is the Greek form of absent. In her case the corpus callosum, which connects the brains two hemispheres , is completely absent. I have spent many hours staring at images of this part of the brain, and have decided to use the metaphor of a broken butterfly to explain this to my own child………..
I have a broken butterfly that lives inside my head
It has the most beautiful wings, but it has no back!
As I grow and learn the wings flutter and dance,
Yet they will not talk to one and other,
Which can make me mad!
They make it hard for me to walk,
So hard for me to skip!
I am only four you know,
But my determination is my thread.
My Mummy and Daddy hold the needle,
As I sew them piece by piece,
In any way I can.
My physio,
My cast,
My walking frame,
And lots of games.
My big brother by my side.
His butterfly is strong,
So he helps me stitch.
We all have different butterflies,
Living in our head.
I have a patchwork butterfly,
I made all by myself,
Look!
Can you see it fly!
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I am mum to 2 young kids who are my world. I have struggled with anxiety and depression in recent years whilst trying to be the best I can be for them. I write a blog called MummyMrsMe which is my therapy, my "ME" time, and I hope, a good wee read..
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